Ataxia Brain Repository
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Description and Purpose

How to become a donor
Finding a cure for any neurological disorder begins with the scientific study of the disorder’s causes, the brain processes that underlie the disorder, and the changes that occur in the brains of people suffering from that disorder.  For the spinocerebellar ataxias, a group of movement disorders characterized by problems with balance and coordination, such scientific studies are still needed.  Through an established collaboration between the New York brain bank at Columbia University and Yale School of Medicine, we have developed an interest and expertise in studying the brains of patients with disorders that involve the cerebellum. To that end, we have begun to study the brains of patients with spincocerebellar ataxia. There is still much to learn and we must overcome a severe shortage of brains for scientific study.

If you have been diagnosed with a spinocerebellar ataxia with genetic confirmation, donating your brain tissue in the hours immediately after your death is of utmost importance in providing crucial information about what causes ataxia. Direct analysis of the shape and number of nerve cells and their content will provide medical researchers with the information they need in order to understand this complex illness.  By advancing our medical knowledge of spinocerebellar ataxia, the gift of brain tissue is a central piece of the puzzle in the search to develop better treatments and find a cure.


How to become a donor
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